Ready the cannons!
Oooohkay…. Many of you, I know, have been wondering what the last cryptic post was about.
Now that I have had the chance to calm down… a little… I can explain.
When this all blew up, we were advised to apply for consideration of benefits relating to this illness and a couple of other things that Dad has never claimed for. It resulted in me having to complete 4 lots of paperwork to send to 2 different parts of DVA because apparently Dad (like many of his comrades) fall under two different sets of rules… everything up to 1972 comes under what’s called SCRA, and everything after 72 is something else…
In their wisdom, DVA had two case officers handling the different cases… Case officer A) – we will call her “Betty” was handling the SCRA application which covered two parts, the Glioblatoma and ‘every else’ (chronic chest, ulcer, hearing loss etc). Then we had case officer B) – let’s call her “Fanny” shall we! Again her forms were broken down to Glioblatoma and a second one for everything else.
Betty, was a sweetheart. She contacted us if something didn’t arrive, she asked questions, provided extra forms and even called me to get a better understanding of how we believed Dad’s Gastric Ulcer was associated with his service. When she had made her decision she called me to tell me that the Chest issue (Chronic Bronchitis) was going to be accepted, but that unfortunately the the Glioblastoma wasn’t because based on their medical information that his service wasn’t seen to be a contributing factor… she went through and explained the fact we could appeal if we had additional information etc… and that the Ulcer case would have a decision made shortly once she’d been able to review my expanded paperwork.
Fantastic… brilliant…. we knew where we stood.
FANNY on the other hand appears to have just been one! We received a blanket response from this person saying that all applications were being denied. They even went as far as imply that if Dad had helicobacter pylori he should have applied for it when he left the navy… That would be a fine trick! Dad left in 1982… that was the year that Professor Marshall drank a cocktail from a petri dish to help support his theory of how ulcers were formed… clinical trials of an antibiotic did start until the 1990’s and I should know as Dad was part of them!!!!!!! Fanny even went on to say that Dad hadn’t had any recent instances so it didn’t matter. Had they contact us we could have provided all the details we provided to BETTY… In fact… They should have had the information there on dad’s file after I did!
They also made a wade of other assumptions that were wrong, and we are now going to have to appeal all that…
They devil’s in the detail…
So now… on top of everything else I have to start trolling through Dad’s medical records to find out all the supporting information I can before i look at making an appeal.
To that end… with relationship to the brain cancer…. can people please let me know if you know ANYONE with military history who has passed away or has been diagnosed with a brain cancer. I am trying to dig up information from the US as well – there is even a facebook page dedicated to Vietnam Vets who are suffering GBM.
That was number one.
Number 2… DVA contact us, again through letter, saying that based on Dad’s assets, we don’t look like we are eligible for any concessions for care placements… Frell
Number 3… Sir Charlies may have led us up the Garden path… because we had a call from Bethesda saying that “did we know that Bethesda is only a short term palliative care service, also known as “transitional”?” FECK ARSE SHITE! (This may not however be too much of an issue as Dad may be at a point of being ‘full palliative’ and in that case we might be able to get into Hollywood Repat or St John of God’s Murdoch…. watch this space.
So that’s where things stand for now… We had intended to take Coco in to see her Dad today, but last night the poor baby pulled up lame on her right back leg, so it was a quick trip to the vet for some anti-inflammatory drugs and a day of rest for the puppy.
Now I am going to go back and fight with my uni assignment some more…
ADDENDUM… I have decided to participate in a fundraising walk happening in Perth in November that is specifically raising funds for brain cancer research… if you want to read about it.